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Inform issue 22 – Autumn 2017

  • Text
  • Products
  • Netball
  • Abilities
  • Spinal
  • Ndis
  • Inform
  • Autumn
  • Disability
  • Australia
  • Polio
In this edition of Inform we celebrate people out in their communities. We meet John who shares with us his determination which resulted in a new creative direction.


polioperspectives Reflections on 2016 I’d like to extend my sincere thanks to all Polio Network Victoria committee members who continue to be the link between the support groups in their region and the workings of the PNV committee. In May last year, Gary Edney joined us as a committee member and his extensive legal knowledge and experience has provided invaluable support. New members are always welcome, so please give this consideration. Thanks are extended to Independence Australia staff who have assisted with practical support for meetings and the preparation of materials for Polio Day. Polio Day 2016 was a particularly important event for PNV as it celebrated 60 years since the introduction of the Salk vaccine into Victoria in 1956. We were delighted to have as special guests Sir Gustav Nossal AC, CBE, Mr. Don Jago (Rotary Club of Camberwell), Mr. Bill Jarrad (Mindwerx International) and Mr. Frank McGuire MP (Parliamentary Secretary for Medical Research). Thanks to Fran Henke, who undertook the task of MC on the day, for her usual attention to detail and background on our special guests. Special thanks also to Maxine Keystone and Georgie Stayches for their tireless work to make the day such a success, and for the raffle prizes provided by members Joan Tie and Lyn Bates. Feedback from attendees was most positive. Some polio survivors may have already rolled over to the NDIS and others will be part of the rollout over the next months and years. I urge you to be diligent in gathering all the supporting evidence you can to enable a suitable plan to be developed which best matches your needs now and into the future. It will be a challenging and hopefully rewarding time for those eligible to enter the NDIS. This year Polio Australia hosted the Australasian- Pacific Post-Polio Conference in Sydney. Congratulations to all involved in bringing this most valuable conference together. In November, I attended the Annual General Meeting of Polio Australia. As part of the awareness-raising campaign ‘We’re Still Here’ a large group of polio survivors ‘walked’ to the House of Representatives and Senate at Parliament House, Canberra. Polio Network Victoria (under the auspice of Independence Australia) is still keen to employ an Administration Officer on a part-time basis (10 hours per month) to help with office tasks, enquiries and distribution of information. This position can be undertaken from your home with back-up resources from IA. If you are interested, please contact me to discuss. I hope you’ve had the opportunity to rest, draw breath and be ready to carry on again with all the wonderful work you do every day to support fellow polio survivors and educate health professionals and the general public. Bev Watson Chair, Polio Network Victoria 28 Inform

polioperspectives In the Spring 2015 edition of Inform the first half of Eulberg’s article ‘What Having Had Polio Causes, Might Cause and Does Not Cause’ was published. What having had polio causes, might cause and does not cause PART 2 The second half of the article covers what symptoms may be related to polio (secondary effects) and what symptoms may be compounded by having had polio (tertiary effects). It provides useful insight for polio survivors and others into what symptoms are and are not polio-related. More important than establishing the relationship between a condition and prior polio is finding a treatment or solution for the medical problem. Post-polio experts agree that in most instances the management or treatment plan for the secondary and/or tertiary problems are the same as for people who did not have polio. Published with permission by Marny K. Eulberg, MD, Family Practice, Denver, Colorado Marny K. Eulberg, MD, is a polio survivor who has worn a brace for more than 30 years. She is a family physician who founded a post-polio clinic in 1985 and has seen more than 1,500 polio survivors. Eulberg was named ‘Colorado Family Physician of the Year’ by the Colorado Academy of Family Physicians in 2005. She is a member of the PHI Board of Directors and serves as Secretary. Autumn 2017 29