1 year ago

Inform issue 27 – Autumn 2019

In this issue of Inform we celebrate the art of movement and the personal significance it holds for everyone. We also chat to Ryan, a wheelchair user who offers his advice on how to plan the night out.


14 Interview We’ve Got This There are plenty of misconceptions about what is means to parent with a disability. It’s exactly these misconceptions that Eliza Hull wanted to dispel with her series ‘We’ve Got This’ for ABC Radio National. As the inaugural winner of the ABC’s Regional Storyteller Scholarship, Eliza wanted to tell authentic stories of parenting with a disability.

Interview 15 I wanted to feel represented, and know what it was going to be like to be a parent with a disability. Can you tell us a little bit about yourself? My name is Eliza Hull, and I am a mother with a physical disability. I live in Castlemaine with my husband Karl, and my four-year-old daughter Isobel. I have a neurological condition, ‘Charcot Marie Tooth’, which affects my nervous system. I am also a singer and songwriter, and have written music for TV, theatre and film. Recently I produced the series ‘We’ve Got This’ for ABC Radio National Life Matters and ABC Life about parenting with a disability. You were the inaugural recipient of the ABC’s Regional Storyteller Scholarship for 2018, can you tell us about that program? The Regional Storyteller Scholarship is an ABC initiative. The scholarship is for an emerging storyteller with a project idea, who has a disability and is rural/regionally located. This year they’re offering two more scholarships, which is fantastic. I believe it’s important for disabled people to share their own stories and ideas, and these scholarships enable that. What inspired the development of 'We've Got This'? When I was pregnant five years ago, I felt unrepresented. In all the stacks of parenting books I was given, there were no mums like me. In fact, there were no parents with disabilities at all. I wanted to feel represented, and know what it was going to be like to be a parent with a disability. ‘We’ve Got This’ is a series which aimed at changing this, by sharing the stories of parents with disabilities in a way that could accurately represent their lives, and didn’t over sensationalise their stories. I wanted to change some of the misconceptions that people have about parenting with a disability. There are still a lot of barriers, and most come out within the wider society. I believe there is still a societal view that parents with disabilities can’t look after children. This is especially the case for parents with intellectual disabilities. I wanted to show that parents with disabilities are successfully parenting, in fact they’re actually thriving. What has the response to 'We've Got This' been like? It’s been overwhelming. I didn’t realise how much these stories were going to resonate with people. I think it’s a really timely subject, and this is due to the fact that there still isn’t a lot of representation of parents with disabilities out there. My favourite responses have been when people write to me and say that the series changed their perceptions. I remember one email in particular from a lady who said she held the view that parents with intellectual disabilities shouldn’t be allowed to keep their children, and that hearing first-hand from parents with intellectual disabilities she now holds the opposite view and believes that we should support parents with intellectual disabilities to keep their children. This was incredible, seeing this kind of change happen. It’s been incredible to have such a huge amount of support from other media organisations as well, including the BBC and Channel 9’s The Today Show, who have both asked for interviews in regard to the series. What did you want listeners to get from the series? I want listeners to gain a greater understanding of what it means to be a parent with a disability. I want them to be challenged, and gain a different perspective. Parents with disabilities are successfully parenting, I hope these stories will show that.